"Tremendous financial burden": Crowdfunding for organ transplantation costs in Canada
Autoři:
Sarah J. Pol aff001; Jeremy Snyder aff003; Samantha J. Anthony aff001
Působiště autorů:
The Hospital for Sick Children, Toronto, Ontario, Canada
aff001; Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada
aff002; Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada
aff003; Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, Ontario, Canada
aff004; Canadian Donation and Transplantation Research Program, Edmonton, Alberta, Canada
aff005
Vyšlo v časopise:
PLoS ONE 14(12)
Kategorie:
Research Article
prolekare.web.journal.doi_sk:
https://doi.org/10.1371/journal.pone.0226686
Souhrn
Online crowdfunding platforms such as GoFundMe are used to raise funds for health-related expenses associated with medical conditions such as organ transplantation. By investigating crowdfunding in Canadian organ transplantation, this study aimed to increase understanding of the motivations and outcomes of organ transplantation crowdfunding. Canadian liver and kidney transplantation campaigns posted to GoFundMe between May 30 & 31 2018 were identified and after exclusion, 258 kidney and 171 liver campaigns were included in study. These campaigns were coded for: worthiness of the campaign recipient, requested financial and non-monetary contributions, how monetary donations would be spent, and comments on the Canadian health system, among others. Results suggest Canadian organ donors, transplant candidates, recipients, and their families and caregivers experience significant financial difficulties not addressed by the public health system. Living and medication costs, transportation and relocation expenses, and income loss were the expenses most commonly highlighted by campaigners. Liver campaigns raised nearly half their goal while kidney campaigns received 11.5% of their requested amount. Findings highlight disease burden and the use of crowdfunding as a response to the extraordinary costs associated with organ transplantation. Although crowdfunding reduces some financial burden, it does not do so equitably and raises ethical concerns.
Klíčová slova:
Pediatrics – Health economics – Finance – Kidneys – Organ transplantation – Renal transplantation – Liver transplantation – Liver
Zdroje
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PLOS One
2019 Číslo 12
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