#PAGE_PARAMS# #ADS_HEAD_SCRIPTS# #MICRODATA#

Ethical and Practical Issues Associated with Aggregating Databases


article has not abstract


Vyšlo v časopise: Ethical and Practical Issues Associated with Aggregating Databases. PLoS Med 5(9): e190. doi:10.1371/journal.pmed.0050190
Kategorie: Guidelines and Guidance
prolekare.web.journal.doi_sk: https://doi.org/10.1371/journal.pmed.0050190

Souhrn

article has not abstract


Zdroje

1. GuttmacherAECollinsFS

2005

Realizing the promise of genomics in biomedical research.

JAMA

294

1399

1402

2. Wellcome Trust Case Control Consortium

2007

Genome-wide association study of 14,000 cases of seven common diseases and 3,000 shared controls.

Nature

447

661

678

3. DaltonR

2004

When two tribes go to war.

Nature

430

500

502

4. SafranCBloomrosenMHammondWELabkoffSMarkel-FoxS

2007

Toward a national framework for the secondary use of health data: An American Medical Informatics Association White Paper.

J Am Med Inform Assoc

14

1

9

5. WangSSFridingerFSheedyKMKhouryMJ

2001

Public attitudes regarding the donation and storage of blood specimens for genetic research.

Community Genet

4

18

26

6. CaulfieldT

2007

Biobanks and blanket consent: The proper place of the public good and public perception rationales.

Kings Coll Law J

18

209

226

7. AndrewsL

2006

Who owns your body? A patient's perspective on Washington University v. Catalona.

J Law Med Ethics

34

398

407

8. HakimianRKornD

2004

Ownership and use of tissue specimens for research.

JAMA

292

2500

2505

9. ArnasonV

2004

Coding and consent: Moral challenges of the database project in Iceland.

Bioethics

18

27

49

10. CaulfieldTUpshurREDaarA

2003

DNA databanks and consent: A suggested policy option involving an authorization model.

BMC Med Ethics

4

E1

11. MaschkeKJ

2005

Navigating an ethical patchwork—Human gene banks.

Nat Biotechnol

23

539

545

12. LavoriPWKrause-SteinraufHBrophyMBuxbaumJCockroftJ

2002

Principles, organization, and operation of a DNA bank for clinical trials: A Department of Veterans Affairs cooperative study.

Control Clin Trials

23

222

239

13. VatesJRHetrickJLLavinKLSharmaGKWagnerRL

2005

Protecting medical record information: Start your research registries today.

Laryngoscope

115

441

444

14. KnoppersBMFortierILegaultDBurtonP

2008

The Public Population Project in Genomics (P(3)G): A proof of concept.

Eur J Hum Genet

16

664

665

15. SmithBAshburnerMRosseCBardJBugW

2007

The OBO Foundry: Coordinated evolution of ontologies to support biomedical data integration.

Nat Biotechnol

25

1251

1255

16. KnoppersBMSaginurM

2005

The Babel of genetic data terminology.

Nat Biotechnol

23

925

927

17. KohaneISAltmanRB

2005

Health-information altruists—A potentially critical resource.

N Engl J Med

353

2074

2077

18. LinZOwenABAltmanRB

2004

Genomic research and human subject privacy.

Science

305

183

19. MalinBA

2005

An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future.

J Am Med Inform Assoc

12

28

34

20. LinZHewettMAltmanRB

2002

Using binning to maintain confidentiality of medical data.

Proc AMIA Sym

454

458

21. MalinBA

2005

Protecting genomic sequence anonymity with generalization lattices.

Methods Inf Med

44

687

692

Štítky
Interné lekárstvo

Článok vyšiel v časopise

PLOS Medicine


2008 Číslo 9
Najčítanejšie tento týždeň
Najčítanejšie v tomto čísle
Kurzy

Zvýšte si kvalifikáciu online z pohodlia domova

Získaná hemofilie - Povědomí o nemoci a její diagnostika
nový kurz

Eozinofilní granulomatóza s polyangiitidou
Autori: doc. MUDr. Martina Doubková, Ph.D.

Všetky kurzy
Prihlásenie
Zabudnuté heslo

Zadajte e-mailovú adresu, s ktorou ste vytvárali účet. Budú Vám na ňu zasielané informácie k nastaveniu nového hesla.

Prihlásenie

Nemáte účet?  Registrujte sa

#ADS_BOTTOM_SCRIPTS#