Can Data Sharing Become the Path of Least Resistance?

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In this month’s editorial, the PLOS Medicine editors note recent progress towards data sharing as the community norm in medical research and the barriers that remain.

Vyšlo v časopise: Can Data Sharing Become the Path of Least Resistance?. PLoS Med 13(1): e32767. doi:10.1371/journal.pmed.1001949
Kategorie: Editorial
prolekare.web.journal.doi_sk: https://doi.org/10.1371/journal.pmed.1001949

Souhrn

In this month’s editorial, the PLOS Medicine editors note recent progress towards data sharing as the community norm in medical research and the barriers that remain.

Zdroje

1. Modjarrad K, Moorthy VS, Millett P, Gsell P-S, Roth C, Kieny M-P. Developing Global Norms for Sharing Data and Results during Public Health Emergencies. PLoS Med 2016; 13(1): e1001935. doi: 10.1371/journal.pmed.1001935 26731342

2. World Health Organization. Developing global norms for sharing data and results during public health emergencies. http://www.who.int/medicines/ebola-treatment/blueprint_phe_data-share-results/en/ Accessed December 9, 2015.

3. Whitty CJM, Mundel T, Farrar J, Heymann DL, Davies SC, Walport MJ. Providing incentives to share data early in health emergencies: the role of journal editors. Lancet 2015; 386(10006): 1797–1798.

4. International Committee of Medical Journal Editors. Recommendations for the for the Conduct, Reporting, Editing, and Publication of Scholarly work in Medical Journals. http://www.icmje.org/recommendations/browse/publishing-and-editorial-issues/overlapping-publications.html Accessed January 5, 2016

5. Institute of Medicine (IOM). 2015. Sharing clinical trial data:Maximizing benefits, minimizing risk. Washington, DC: The National Academies Press. http://www.nap.edu/catalog/18998/sharing-clinical-trial-data-maximizing-benefits-minimizing-risk Accessed December 10, 2015.

6. Taichman DB, Backus J, Baethge C, Bauchner H, de Leeuw PW, Drazen JM, et al. Sharing Clinical Trial Data: A Proposal from the International Committee of Medical Journal Editors. PLoS Med. 2016; 13(1): e1001950. doi: 10.1371/journal.pmed.1001950

7. De Angelis C, Drazen JM, Frizelle FA, Haug C, Hoey J, Horton R, et al. Clinical Trial Registration: A Statement from the International Committee of Medical Journal Editors. 2004 http://www.icmje.org/news-and-editorials/clin_trial_sep2004.pdf Accessed December 9, 2015.

8. Bill & Melinda Gates Foundation Open Access Policy. http://www.gatesfoundation.org/How-We-Work/General-Information/Open-Access-Policy Accessed December 10, 2015.

9. Strom BL, Buyse M, Hughes J, Knoppers BM. Data Sharing, Year 1—Access to Data from Industry-Sponsored Clinical Trials. NEJM 2014; 371 : 2052–2054. doi: 10.1056/NEJMp1411794 25317745

10. Vallance P, Freeman A, Stewart M. Data Sharing as Part of the Normal Scientific Process: A View from the Pharmaceutical Industry. PLoS Med 2016; 13(1): e1001936. doi: 10.1371/journal.pmed.1001936 26731493

11. Zarin DA, Tse T. Sharing Individual Participant Data (IPD) within the Context of the Trial Reporting System (TRS). PLoS Med 2016; 13(1): e1001946. doi: 10.1371/journal.pmed.1001946