Registration of childhood cancer – current status and perspectives

Czech version

Authors: M. Makohusová ¹; E. Kaiserová ¹; A. Kolenova ¹; E. Bubanská ²; T. Stančoková ²; I. Oravkinová ³; V. Halušková ³; L. Žilinčanová ²; A. Hrašková ¹; J. Puškáčová ¹; J. Fedoráková ²; H. Fillová ²; P. Bician ²; L. Deák ³; P. Švec ⁴; V. Hlodáková ⁵; G. Valachová ⁵; K. Krištof ⁵; E. Steliarovafoucher ⁶
Authors‘ workplace: Klinika detskej hematológie a onkológie LF UK a NÚDCH, Bratislava, Slovenská republika ¹; Klinika pediatrickej onkológie a hematológie SZU a DFNsP, Banská Bystrica, Slovenská republika ²; Oddelenie detskej onkológie a hematológie DFN Košice, Slovenská republika ³; Transplantačná jednotka kostnej drene, KDHaO, NÚDCH, Bratislava, Slovenská republika ⁴; Národný onkologický register Slovenskej republiky, Národné centrum zdravotníckych informácií, Bratislava, Slovenská republika ⁵; Sekcia pre dohľad nad rakovinou, Medzinárodná agentúra pre výskum rakoviny, Lyon, Francúzsko ⁶
Published in: Klin Onkol 2025; 38(6): 427-435
Category: Reviews
doi: https://doi.org/10.48095/ccko2025427

Overview

Background: Childhood cancer is a serious health issue that still does not receive sufficient attention on a global scale compared to cancer in adults. Specialized pediatric cancer registries play a crucial role in collecting detailed data on tumor types, treatment outcomes, genetic determinants, predisposition syndromes, and long-term treatment toxicity. Aim: The aim of this review is to emphasize the importance of collaboration between general and specialized pediatric cancer registries in epidemiological research of childhood malignancies and its impact on improving completeness of ascertainment, diagnosis, treatment, and follow-up care. Conclusion: The effective integration of data collected in general and pediatric cancer registries improves data quality and enables analysis of all relevant data, leading to advances in research, optimization of treatment, and improvement in the quality of care for pediatric cancer patients.

Keywords:

incidence – registry – Epidemiology – data collection – pediatric neoplasms

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